My name is Lily. I was diagnosed with Visual Snow Syndrome at 15 years old, but I have been living with it my whole life. Before my diagnosis, I had always assumed I could see particles in the air. It wasn’t until I brought this up to family that I realized this wasn’t the norm. Getting a diagnosis wasn't a straightforward process. It took a GP, an ophthalmologist, and a neurologist to find the cause, along with an MRI, an EEG, and several other tests just to rule everything else out. For a condition that affects your vision every single day, the road to understanding it is surprisingly long.

I have always struggled to read and write due to the intense contrast glare, particularly with black text on white backgrounds. Every assignment requires me to read over the text at least twice to fully absorb it. I had been exploring different solutions on the market, mostly targeted at dyslexia, but none of them seemed to work. The only exception was printing on blue paper. I used this method frequently, especially during my exams (GCSEs and A Levels), but it proved to be somewhat impractical as I grew older.

Visual Snow can be quite an isolating experience, and so I wanted to create this community resource to help other individuals feel less alone and find what might or might not work for them, the way blue paper once worked for me.